My Book!

Dravet Syndrome Blues

Hello y’all!

For a long time, most of the people who read this blog were people I knew in real life. They are people I worked, went to school of church or jiu jitsu with. That being said, they’ve already seen this on facebook. If you’re one of those readers, I apologize for the double exposure.

But

I released my first book this week. It’s a poetry chapbook for Kindle called Dravet Syndrome Blues. Please consider buying it. I haven’t talked about my poetry experience a lot, but I’ve written it forever. In the mid-2000’s, I got really in to spoken word, and had to learn to write poetry meant to be read aloud-so lots of percussive consonants, alliteration, rhyme, and few turns of phrase that need to be read to comprehended.

Since then I experimented with form, and moved away from poems meant to be performed. When I lived in Utah, I started reading at PoetFlow . I enjoyed the community, and the folks at PF are one of the things I miss most about Utah, and I haven’t yet connected with a group in Albuquerque..

I’m not a salesman, I don’t know what I’m doing, but I do want my poems to be read. Thanks.

 

 

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Pictures

Okay, so I failed the #WRITE31DAYS challenge, but I’ve been taking a lot of photos lately.

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Interesting wall outside Arab restaurant

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I was shooting a derelict, burned down motel. This woman entered through the fence, crying. She went into one of the rooms. I felt like a vulture. I left.

 

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Hidden mural

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Spools in parking lot of Asian American Family Center.

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Aztec dancers swirl around Fernando, who keeps steady time.
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Before the effigy is burned.

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Close up of American Toilet King, no friend to the Aztec.

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Hippies with fire and swirls.

 

 

A Late July Update

So no, in regards to my last post, we haven’t found a suitable place of worship just yet. I’m still not ready to give up, but with all the violence and BS happening around the World, I can feel my heart getting hard. I don’t want to be a bitter person. I talked to my dad last week about letting go of grudges and regrets, something I’ve been able to (mostly) do through meditative practices. He relayed he has always had trouble with it. For me, I saw it as intentionally defeating my ego and eliminating wasteful, unproductive habits and beliefs. We all program our brains differently, whether with intent or by accident. I decided I didn’t want to be mad at people who were jerks to me or constantly relive experiences where I failed to rise to the occasion. It surely won’t help me live in the present or be happy, and I think I’ve learned all there was from those experiences, so I discarded that junk like a holey old pair o’ drawers.

My first chapbook, Dravet Syndrome Blues, is written. I’m letting the poems air out and settle for a few days, then I’ll scrutinize them with red pen in hand, and revise. They won’t be too reworked- I want them to be not only GOOD, but an encapsulation of my current influences, experiences, and ability as a writer. I’ve solicited a little feedback, which has been helpful, but I have to just go or I will talk myself out of it. I’m working on layout and design at the moment. Design is not my strong suit, but that’s okay. I haven’t produced a physical product in forever (16 years or so), and I’m excited.

Speaking of books, I finally got around to reading Cormac McCarthy’s “All the pretty horses.” What a fantastic story, and McCarthy is able to write stark, laconic cowboy prose interspersed with flourished, descriptive passages in a way which is totally natural, without an air of contrivance.He’s not trying too hard-he’s just really that good. He is a living master.

Albuquerque is still magical.

I start work next week. I’m looking forward to it, but also not. I have enjoyed having little stress and no routine, but I am a person who very much needs a rigid routine. It will be a good addition to my life.

In addition to routine, I discovered that I also like taking risks and having adventures.  I’m writing this from a hotel room outside Denver. We drove 6.5 hours here so Lindsay and the oldest kid could go see Sufjan Stevens. It wasn’t a bad drive, but prior to realizing that our lives were finite and we were in charge of the character of our lives, I don’t know we would have done this. I want awesome experiences. I don’t hate road trips like I once did, and don’t get tired driving for more than 45 minutes, as growing up on an island is prone to induce.

So things aren’t perfect. I still hold on to old crap sometimes, and sometimes I’m grumpy and snap at the kids. Sometimes I don’t sleep well, and have learned there’s no wisdom in saying “I’ve never gotten sunburn on the tops of my feet”. Still, I think I’m in a good place, literally and figuratively. Seizures, and the threat thereof, are constantly lurking, and I never thought I could feel so dried up by someone else’s condition, but this in my normal. We have abundant moments, and are making stuff happen. I’ll take it.

 

Keeping the sabbath holy

I’ve written much about the spiritual crisis I started about 2.5 years ago. It got dark at times. It’s largely resolved, but featured a period of faithlessness, and a careful examining of what I believe and what it means about how I should live my life.

Church has been a constant, notwithstanding a few weeks here and there. However, since moving to Albuquerque, it’s been difficult to find the right church. We scouted a bunch of places online before arriving, and thought we’d found *our* place. Their social media presence expresses concern in the same things I care about, they’re plugged into the community, all good things. However, after 2 visits, I was unable to see any men between 25-50. The kids were shushed by a deaf lady. Instrumental versions of several patriotic songs were played to celebrate 4th of July, which made my vehement dedication to separation of church and state itch all over.

I don’t want everyone in the world to be like me, but maybe having contemporaries in similar stages of life would be nice. I still need friends. And I understand many people experience being “the only one in the room” on a regular basis, but I don’t want to be a permanent outlier in my faith community. The nursery was in disrepair-it has been a long time since toddlers were there. As a parent of a toddler with Dravet Syndrome, this is an issue.

On the drive to lunch (after ducking out a side door to avoid mingling with the septuagenarians), we all said some variation of “What if we just don’t go to church anymore?” Over Jason’s Deli sandwiches and sweet tea, Lindsay and I both confessed we missed Ogden.

I clarified. I missed people in Ogden, our old church, and the coffee shops, which were many and excellent.

Our old church, the one where we felt so comfortable? 2 families with kids, and rarely did they attend at the same time. That’s all I needed. A few more would have been nice, but it was enough. I like older (including the elderly) people, I just don’t want to hang out exclusively with old people all the time. Not only does it make the necessary evil of small talk difficult, but there’s a disconnect in values, frames of reference, and communication styles. Though this may lead to a wider perspective and deep discussions, it might also lead to me being told hip hop is just noise, and they ain’t even heard that new Chance jawn tho.

Life will never be perfect, but I’m not ready to give up trying. It may mean casting a wider net. I went to a Buddhist meditation class on Thursday. I largely enjoyed the experience, and managed to not fall asleep, even with long stretches of silence. I was a little put off by a little of the dharma talk-there was a short portion about disembodied spirits (which cause illness because they think humans mean them harm) being assuaged by offerings of food. Though that’s not the weirdest thing I’ve heard in a religious setting, it made me uncomfortable.

You see, I grew up with a stringent dark/light binary. Either you were actively reading your bible and praisin’ the Lord, or you were being molested by demons. There was a gross fascination with the occult and Satan. Demons loomed large on my conscience, and I spent more time being afraid of being possessed or descended upon by a fanged tormentor than I was trying to live like Jesus, or the distilled version of simply trying to not be a jerk. It could happen anywhere, anytime. I had anxiety and recurring nightmares about it. Listening to a Color Me Badd song, doing yoga, teaching kids about dinosaurs, watching a movie starring Kevin Spacey were all portals to hades.*I am purposely not linking to videos or articles stating a belief in these statements, because I don’t want to. Google at your own discretion.*

I’m not expecting evil around every corner anymore. Not demons or botulism or ISIS. It is freeing to not focus on negative potential events. Sure, I still lock my doors and keep an eye out for crackheads, pyramid schemes, and wolves, but bad things that might (and totally might not too, you guys) happen don’t consume all my operating RAM. It’s taken me a long time to arrive at a place where I reclaimed the right to worry about what I want to, and use my thoughts as I see fit, and I will fiercely protect it.

And any church I might consider being involved with is just going to have to deal with it.

 

 

 

 

ABQ

We pulled in to Albuquerque late Sunday morning. That night, we had a brief storm after an amazing lightning show. Our furniture was delivered and internet connected on Monday. We’ve been unpacking and arranging and cleaning, and it’s starting to look like people live here.

It’s fantastic to sleep in my own bed again, after sharing an air mattress for a few weeks.

Here’s  the thing- we came here with a plan dream. I declared a do-over. We left steady employment in an okay place with AWESOME people for a place where I know only 1 person , without a job solidly lined up, and not a lot of options, but a great deal of hustle topped with a patina of wishes. We knew the way we were living our lives in Utah was unsustainable.

Tonight we sat on the deck, looking at the pastel Southwestern sunset. We listened to the wind gently rattle leaves, to doves cooing sonnets to each other, to crickets. We watched the crescent moon rise. Magic was all around us.

People often respond “living the dream” when asked “How are you?”

I am really living my dreams. In real life. For real.

I got offered the exact dollar amount I had in mind for what seems like The World’s Best Job.

My house/neighborhood is awesome.

There are bad things, to be sure, like grievances with the moving company, and the  oppressive heat which is making my hair do WEIRD things, and I think my truck is going to die soon, but I am content. I do not recall the last time things felt “right”.

I’m looking forward to meeting people, and carving out a routine, but I am grateful. I’m still not used to this- I am not used to nice things happening to me. I am used to being the purveyor of nice, or feeling stuck in the security line between circles of Hell.

We’ll continue to feather our nest and explore this strange city. I am truly astonished this is all coming together, after years of scheming and talking hypothetically through insomnia. We are building the rad lives we’ve wanted to live for a long time, and I’m stoked to the max.

Changes and Challenges

Last night I read at an open mic. The others there were just starting to remember my name. It was fun, I thought I’d found my tribe. I told everyone I was moving, and the open mic was one of my favorite things about Utah. It felt like good closure, a sweet “see you later.”

I have a great deal of change on the horizon. This is a good thing, and mostly of my own design. I know change can produce stress and anxiety for me. My main challenges are:

1) Leaving the military after 15 years

2)Moving to another state/city (Albuquerque) where I don’t really know anyone

3) Entering the civilian workforce

4) Leaving the small but powerful support system taking root after living in Ogden for a year and a half

 

This is what a Do-Over looks like. I am changing costumes. I am abandoning nearly everything which is familiar.

I’m excited about the individual elements, but looking at it aggregated, it’s a bit much. There are some things I’ll need to be intentional about in order to have some semblance of stability during this tumultuous season:

1) Not neglecting myself- sleep, eat better, exercise

2) Stay connected with God

3) Find peer groups immediately (Especially Jiu Jitsu)

4) Don’t entertain negative thoughts

5) Most importantly, check in with myself so I don’t take my crap out on my family.

 

The next few months, especially the next few weeks are daunting, but I can do it, as long as I remain mindful to remain mindful. I’m a little scared, but my anticipation of my adventure is much stronger than my fear and anxiety. I can do this, and wether I could or not, it’s happening, and I’m grateful.